University of Kansas, Spring 2006
Philosophy 886: Topics in Applied Ethics
Ben Eggleston—eggleston@ku.edu
The Ethics of Genetic Technology
Description: This course examines some important ethical issues
associated with the development and use of technology for the detection and
manipulation of humans’ genes and the human gene pool. Among these issues are
whether efforts to improve the human gene pool can be morally defensible (or, on
the contrary, whether they are necessarily no better than, say, the Nazis’
morally reprehensible program of eugenics), and whether society is morally
obligated to provide gene-improving health care to its citizens. Additional
questions concern reproductive freedom: Does society have the right to limit
individuals’ use of reproductive technology in order to pursue social goals such
as equality of opportunity? Does society have the right to limit individuals’
use of such technology in order to protect the interests of unborn children?
Other questions concern cloning, genetic engineering, and genetic screening
(such as in the workplace). The
primary text for the course is From Chance to Choice: Genetics and Justice, by Allen
Buchanan, Dan Brock, Norman Daniels, and Daniel Wikler; additional readings will
be added along the way.
Class schedule: Fridays, 2:30–4:20, in 3097 Wescoe Hall
Requirements/grading:
Here are the factors that will determine your overall grade, and their
weights (in percentages):
assignment |
weight |
1. term paper |
70 |
2. presentations |
20 |
3. class participation |
10 |
total |
100 |
Further information about these assignments will be provided as the course
progresses, but here are the basic requirements:
- Your term paper should be about 15–20 pages long (or in the range of
4,500–6,000 words), and should be the kind of thing a responsible philosopher
working in this area might submit for publication in a reputable journal: it
should offer an original contribution to the discussion of some important
philosophical issue or text having to do with the ethics of genetic
technology, building (where relevant) on prior significant work on its
topic.
- You are welcome to talk with me at any point in the semester about your
plans for your term paper, and even to ask me to read partial or whole
drafts of anything you might be working on. I invite you to make your term
paper the culmination of a semester of gradual progress, rather than a large
burden to be discharged at the end. Obviously that works best when it happens
voluntarily, but to ensure some minimal steps in this direction, I have
worked out the following schedule of term-paper-related events.
- By Wednesday, April 19, you must e-mail me (at
eggleston@ku.edu) a short account of your plans for your term paper. It
does not have to be long (one or two hundred words could suffice), and you
do not have to have made up your mind about what your term paper is going to
say—on the contrary, your plan should be a preliminary one, open to revision
upon discussion. After I receive your e-mail message, I’ll reply with
written comments or a suggestion that we meet to talk about your plans. Of
course, you are more than welcome, at any time, to initiate a meeting with
me to discuss term-paper ideas, or to discuss such ideas with me
periodically throughout the semester. This April 19 deadline is just meant
to ensure that each of you thinks about your term paper enough to put
something in writing by then.
- On Thursday, May 11, at 12 noon, your paper will be due. You must turn
in a hard copy; when you are printing the hard copy you are going to turn
in, print a second hard copy for yourself. You will be required, later, to
have a duplicate of the draft you turn in.
- At any time before or after you turn in your term paper on May 11, and
definitely by the end of that day, send me an e-mail message letting me know
of some times when you will be available to meet during the week of May 15.
At our agreed time, we will meet, and I will give you comments on your
paper, along with a grade for that draft of it. Please bring to our meeting
an exact physical duplicate of your May 11 draft, so that we
each have the same text in front of us.
- After we meet, you will have until noon on Monday, May 22 to revise your
paper and turn in a hard copy of your revised version of it. I’ll grade this
version of your paper in terms of its overall quality (just like your May 11 draft), not
on how much it is improved from your May 11 draft. (So, you have no incentive
to under-perform on your May 11 draft in order to get a good “improvement”
grade on your May 22 draft. There is no such grade.)
- Your grade for this component of the course will be the average of your grade
for your May 11 draft and your grade for your May 22 draft (assuming
compliance with all of the foregoing deadlines).
- These deadlines are just the latest acceptable dates; you are
welcome to do any or all of this assignment early, by a little or a lot.
Moreover, as I said, I invite you to work on your term paper gradually
throughout the semester rather than leaving it all until the end; if you
take that approach, I might waive the forgoing protocol and let you just
turn in a single final draft of a paper that is good enough to earn you a
grade you’ll be happy with.
- Most class periods will begin with a presentation; I expect that our
schedule will allow each student to do two. Your presentation should be based
on a paper you write of not more than 1,000 words, which you will just read
out loud; you should bring enough copies of your paper to class for everyone
to have one. Your paper should briefly summarize, critically comment on, and
possibly imaginatively enlarge upon the assigned reading for the day. After
you present your paper, questions and discussion will ensue. You will be
graded on the quality of your paper and the quality of your responses to
questions and comments about it. Afterwards, you can meet with me and rewrite
your paper if you would like to raise your grade for your presentation. Your
grade for this component of the course will be the average of the grades you
earn on your individual presentations.
- Good class participation consists of offering intelligent, relevant, and
helpful comments and questions. You should be an active discussant and should feel
free to introduce your own perspective and concerns into the discussion; at
the same time, however, you should not think that more participation is always
better. Ideal class participation involves not only being willing and able to
contribute; it also involves being respectful of others’ time and interests, and
being sensitive to those occasions when a particular topic or thread would be
more appropriately pursued outside of class.
Work will be graded in accordance with the university’s grading system, as
stated in article 2,
section 2 of the of the University Senate Rules and Regulations.
In addition, I should note here that I take academic misconduct, especially
cheating on tests and plagiarizing papers, extremely seriously, and am generally
disposed to impose the harshest permissible penalties when it occurs. To enable
you to meet my expectations in this regard and to do so without fear of
inadvertently falling short of them, I will provide clear and specific guidance
as to what does and does not constitute academic misconduct in advance of tests
and when papers are assigned. Meanwhile, you may consult
article 2, section 6
of the University Senate Rules and Regulations for university policy in
regard to this matter.
If you have a disability for which you may be requesting special services or
accommodations for this course, be sure to contact
Disability Resources (22 Strong Hall / 864-2620 (V/TTY)), if you have not already
done so, and have that office send me a letter documenting the accommodations to
which you are entitled. Please also see me privately, at your earliest
convenience, so that I can be aware of your situation and can begin to prepare
the appropriate accommodations in advance of receiving the letter from
Disability Resources.
Finally, you should feel free to come by my office (3070 Wescoe Hall) at any
time. I have office hours on Fridays from 1:30 to
2:20, but you are also welcome to stop by at other times, either with an
appointment or without. I spend most of the work week in and around my office,
so your chances of finding me should be reasonably high; and although in rare
cases I may have to ask you to come back at another time, in general I will be
happy to speak to you at your convenience.
Book to buy:
- Allen Buchanan, Dan W. Brock, Norman Daniels, and Daniel Wikler, (Cambridge University Press, 2000)
Course materials on the web:
Course documents, including this syllabus, will be available on the web site
for the course, the URL of which is
http://www.ku.edu/~utile/courses/genetic1
(If you don’t want to type in this whole thing, you can stop after ‘utile’—at
which point you’ll be at my personal web site—and then follow the links to the
web site for this particular course.)
The syllabus is one of the pages at
the above site, and since it will be revised and elaborated as the
course progresses, I encourage you to check it online from time to time, instead
of relying on a hard copy.
E-mail distribution list:
I’ve had the KU computer folks set up an e-mail distribution list for the
course, and its address is
phil886_63915sp06_dl@mail.ku.edu
I’ve asked that it be set up so that not only I, but also you, can use it,
so that you can communicate with everyone in the class (including me) whenever
you are so inclined.
In general, I’ll try to mention everything important (whether substantive or procedural) in class. But at times, I may use the e-mail distribution
list to send you information that you will be responsible for having or acting
on, so it is your responsibility to make sure that you read mail that I send to
this list. You can do this by making sure that you (1) have an e-mail address,
(2) are registered for the course (because this list is updated every night to
reflect current enrollment, taking account of drops and adds), and (3) read your
e-mail. There is one complication that you should be aware of: if you have both an
Exchange e-mail address (e.g., so-and-so@ku.edu) and a non-Exchange e-mail
address (e.g., so-and-so@yahoo.com), and you prefer to receive e-mail at the
latter address, then mail sent to the e-mail distribution
list for the course will not necessarily go to it, even
if you have registered it with KU as your primary e-mail address. (This is a
minor glitch in the KU distribution-list system.) To deal with this problem,
either check your Exchange account as often as your check your non-Exchange
account, or arrange for mail sent to your Exchange account to be forwarded to
your non-Exchange account. For more information on this problem and how to solve
it, see the
Exchange Distribution
List Primer, question 2: “Some of the people on my list say they’re not
getting my list mail. Why?”
Schedule:
For the most part, we’ll be working through From Chance to Choice. Additional readings will be added along the
way.
January 20:
-
Introduction (no assigned reading)
January 27:
- From Chance to Choice, chapter 1: “Introduction”, and both
appendices
February 3:
- From Chance to Choice, chapter 2: “Eugenics and its Shadow”
- presentation by Piotr Palacz
February 10:
- From Chance to Choice, chapter 3: “Genes, Justice, and Human
Nature”
- presentation by Piotr Palacz
February 17:
- From Chance to Choice, chapter 4: “Positive and Negative Genetic
Interventions”
- presentation by Jennifer Kittlaus
February 24:
- From Chance to Choice, chapter 5: “Why not the Best?”
- presentation by Courtney Gustafson
March 3:
- From Chance to Choice, chapter 6: “Reproductive Freedom and the
Prevention of Harm”
- presentation by Bill Simkulet
March 10:
- From Chance to Choice, chapter 7: “Genetic Intervention and the
Morality of Inclusion”
- presentation by Cliff Phillips
- Further discussion of the issues raised in this chapter can be found the
“Symposium on Disability” contained in a recent issue of Ethics (volume
116, number 1—October 2005). Here is a link to the contents of this issue,
although you may need to access the following web page from an on-campus
computer in order for the journal’s server to allow you to view the articles listed there:
http://www.journals.uchicago.edu/ET/journal/contents/v116n1.html.
- A future issue of the online journal Essays in Philosophy will be
devoted to the philosophy of disability; for information, including
information about submitting a paper to be considered for this issue (deadline
October 1, 2007), see this web page:
http://www.humboldt.edu/~essays/topics.html.
March 17:
- From Chance to Choice, chapter 8: “Policy Implications”
- presentation by Courtney Gustafson
March 24: no class (spring break)
March 30–31: campus visit by Dan Brock
- Thursday, March 30, 7:30 p.m.: “The Ethics of Using Genetics to Make
Better People” (Centennial Room, Kansas Union)
- Friday, March 31: class session with Brock
April 7: no class (rescheduled to April 10)
April 10: replacement class for April 7; note special time—5:30–7:20 (same
location)
- The President’s Council on Bioethics, Human Cloning and Human Dignity: An Ethical Inquiry, selections
listed below
- The main web page for this document is here:
http://www.bioethics.gov/reports/cloningreport/index.html.
- For this week, we will read four parts of this document, listed below.
Following the name of each part is a link to a PDF file containing the pages
in the report constituting that specific part; please print these files if
you have not been able or inclined to obtain your own copy of the council’s
report. (I made these PDF files by
extracting the relevant pages from a PDF file of the whole report that I
downloaded from the above web page. The above web page only has that one big
PDF file, not PDF files for individual parts.)
- Letter of Transmittal—PDF
- Preface—PDF
- Executive Summary—PDF
- chapter 5: “The Ethics of Cloning-to-Produce-Children”—PDF
- an opposing view: Ron Green, “I, Clone” (Scientific American Presents
volume 10, number 3 (Fall 1999), pp. 80–83)
- I'll provide you with a copy of this article.
- presentation by Jennifer Kittlaus
April 14: no class (rescheduled to April 19)
April 19: replacement class for April 14; note special time—5:30–7:20
(same location)
- Human Cloning and Human Dignity: An
Ethical Inquiry, chapter 6: “The Ethics of
Cloning-for-Biomedical-Research”—PDF
(Again, please print this file if you do not have your own copy of the
council’s report.)
- opposing views, both from the liberal online magazine Slate (I’ll
provide you with copies of these.)
- Michael Kinsley, “The Incoherent Embryophile: Bush’s Position on Cloning Makes No
Sense” (Slate, November 29, 2001), at
http://www.slate.com/id/2059128
- William Saletan, “Bush’s Mutant Cloning Report: The Political
Manipulation of Bush’s Bioethics Council” (Slate, July 16, 2002), at
http://www.slate.com/id/2068129
- presentation by Bill Simkulet
Also, today (April 19) is the deadline for e-mailing me about your
plans for your term paper. (See the description of the term-paper assignment for details.)
April 21:
- readings on genetic discrimination—I’ll provide you with copies of these:
- Philip Kitcher, The Lives to Come: The Genetic Revolution and Genetic
Possibilities, chapter 6: “The New Pariahs?”
- William Nowlan, “A Rational View of Insurance and Genetic Discrimination”
(Science, July 12, 2002, pp. 195–196), at
http://www.sciencemag.org/cgi/reprint/297/5579/195.pdf (possibly
accessible only from an on-campus computer)
- Karen H. Rothenberg and Sharon F. Terry, “Before It’s Too Late—Addressing
Fear of Genetic Information” (Science, July 12, 2002, pp. 196–197), at
http://www.sciencemag.org/cgi/reprint/297/5579/196.pdf (possibly
accessible only from an on-campus computer)
- presentation by Cliff Phillips
April 28:
- Jürgen Habermas, The Future of Human Nature
- foreword
- “Are There Postmetaphysical Answers to the Question: What is the “Good
Life”?”
- “The Debate on the Ethical Self-Understanding of the Species,” to p. 53
- presentation by Piotr Palacz
May 5:
- The Future of Human Nature
- “The Debate on the Ethical Self-Understanding of the Species,” from p.
53
- postscript
- The third part of the book, “Faith and Knowledge,” is optional.
Thursday, May 11: No class, but today, 12 noon, is the deadline for
turning in a hard copy of the first draft of your term paper. Also, e-mail me
with some times when you will be available to discuss it during the week of May
15.
Monday, May 22: No class, but today, 12 noon, is the deadline for turning
in a hard copy of the second draft of your term paper.